I was born with a life-shortening genetic disease called cystic fibrosis. When I was diagnosed in 1988, my parents were told I wouldn’t live to turn 20. This year, I’ll turn 29. I’m grateful for the medical miracles that have enabled me to have a long, full life, complete with marriage and parenthood. But those miracles have come at great cost. Each year, my prescriptions alone total at least $460,000. Adding in specialist visits and inpatient hospital stays, that number gets exponentially higher. Without the medications, specialist visits, and treatments that price tag buys, I will die in short order. Without one medication, my cells will lose the degree of…